Joint Hypermobility Handbook- A Guide For The Issues & Management Of Ehlers-Danlos Syndrome Hypermobility Type And The Hypermobility Syndrome Download Free (EPUB, PDF)

                
              
Joint Hypermobility Handbook- A Guide For The Issues & Management Of Ehlers-Danlos Syndrome Hypermobility Type And The Hypermobility Syndrome Download Free (EPUB, PDF)
As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the weatlth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: • Genetics • Medical Genetics • Orthopedics • Family and General Practice Brad T. Tinkle, M.D., Ph.D., is a clinical and clinical molecular geneticist at Cincinnati Children's Hospital Medical Center (CCHMC). He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and achondroplasia among the many.
Paperback: 260 pages
Publisher: Left Paw Press, LLC; 1 edition (July 12, 2010)
Language: English
ISBN-10: 098257715X
ISBN-13: 978-0982577158
Product Dimensions:  6 x 0.6 x 9 inches
Shipping Weight: 11.2 ounces (View shipping rates and policies)
Average Customer Review:  4.4 out of 5 stars  See all reviews (80 customer reviews)
Best Sellers Rank: #30,886 in Books (See Top 100 in Books)   #5 in Books > Textbooks > Medicine & Health Sciences > Medicine > Clinical > Orthopedics   #8 in Books > Textbooks > Medicine & Health Sciences > Medicine > Basic Sciences > Genetics   #9 in Books > Medical Books > Medicine > Surgery > Orthopedics
Dr Tinkle is a rare gem in the CTD world. Those of us with a Connective Tissue Disorder know how difficult it is to find a physician who in truly informed and engaged in up to date, appropriate treatment for these conditions. Dr Tinkle is amazingly available to his patients and truly cares about each individual he sees.In this book, basically a revised & expanded version of his first book, Dr Tinkle explains the head to toe issues experienced by an Ehlers Danlos patient. This condition, so unknown to most, is debilitating, excrutiatingly painful, and very difficult to treat. Dr Tinkle makes the complexities of EDS much more understandable for those of us without a medical degree.This book in an EXCELLENT resource for the newly diagnosed, or veteran EDSer who just wants to learn more. However, its most valuable use by far is as a learning tool for the Family Doctor who finds themselves treating an EDS patient. So few General Practitioners know anything about EDS beyond "Hypermobile, with stretchy skin" that EDS patients find themselves frustrated and unable to get proper pain management and care. I highly recommend that all EDS patients carry a copy of this to their GP and urge them to read it.This book is amazing, thank you Dr Tinkle!
Wow ~ what can you say about Dr. Brad Tinkle that hasn't already been said here. Well I'll share a bit. I purchased his first book right in the middle of a terribly frightening time in my life ~ experiencing the new onset of significant pain in nearly every joint in my body in my 5th decade of life...postoperatively. Post-operatively in a new way - two artificial knees - and in an old way - 3 year old hips. Burning my way through that book ~ had the light go on in a huge, huge way ... & I began my quest for diagnosis of some type of connective tissue disorder.The diagnosis of Hypermobility Syndrome was forth-coming & Dr. Tinkle's book shed so much light I actually would fall asleep at night with the book right by my side as I would read & reread to learn. Through the book I began to gain in small steps some appropriate medical care. Granted I drove everywhere to get it ~ and even endured the age-old, "get counseling ~ it can help fatigue" - while trying to ignore side-long glances. Yet I persevered because I KNEW Dr. Brad KNEW what he was talking about. He was my light at the end of the tunnel. I gave the book to my doctors and happily some took it most willingly (they chuckled and thanked me for not highlighting it all up with, "see? that's me!" "see again? this is me!" - as I admitted I was tempted to do! Next I discovered this newest book was published & I bought two copies....one for myself....and the other for 'who knows who' as I am relocating and need to begin again the process of building my team of clinicians to aide me in dealing with Hypermobility Syndrome.I wondered how in the world any book could improve on the first.. I no longer wonder! This book again spells out in decided detail all of the reassurance you the reader seek ~ to be validated by a highly esteemed professional - Dr. Tinkle - in your experience as an EDS-HM or Hypermobility Syndrome patient. The book goes in depth to a greater degree with some of the pertinent clinical findings a clinician (or even patient) can find on exam and in diagnostic testing and patient history. It then discusses further some possible road maps for the patient/caregiver/doctor team to navigate for better outcomes in dealing with the varied difficult (albeit common) issues such as chronic pain & disability. Additionally the book traverses the reality of symptoms as they impact all the various age groups in life with EDS-HM/Hypermobility Syndrome. It becomes easy to see how early diagnosis can directly impact lives for the better -- maintaining wellness to the greatest extent possible armed with knowledge - is so much better than having four artificial joints beginning in your forties in utter ignorance.Another service that is not to be minimized is Dr. Tinkle's expressed opinion on Hypermobility Syndrome being of the same animal perhaps as EDS-HM. Too often Hypermobility Syndrome or the dreaded 'Benign Joint Hypermobility Syndrome' diagnosis is met with random disbelief, accusation, or frank, "So What". It's never comfortable to be dismissed ~ most especially when in pain and striving to attain the help and treatment you deserve to live your best possible life. Only in sharing the beginning words of "I have Ehlers-Danlos Syndrome....." would any medical practitioner begin to pay attention ~ sifting through what they read or recalled back in college or medical school. This was good news as I then would launch into my notion of having a 'variant' of it perhaps - Hypermobility Syndrome and offer Dr. Tinkle's book to them for further reading & expert knowledge.I began my process of achieving better wellness on the foundation of what Dr. Tinkle has made available to everyone in the writing of this newest book and his first. I simply and humbly wish to thank him for pioneering in this fashion...I cringe to think where I'd be today if it weren't for this helpful writing and encourage you to read either one, or better - both. For anyone who may have EDS-HM or Hypermobility Syndrome and feel you need a 'voice' as you self-advocate ~ I sense Dr. Tinkle is truly present for you and with you through these pages.
As a teenager recently diagnosed with Joint Hypermobility Syndrome, I have found Dr. Tinkle's books very helpful and understandable. This book in particular has proven to be a vital guide for everyday life with JHS. Instead of running in to my primary doctor right away, I can now look in the handbook and check if my symptoms are related to JHS. When I actually went in to be seen by my doctor this week with severe rib pain and shortness of breath, we were able to figure out what was wrong quickly because I brought the book along. The independence and assurance that having this book can bring to JHS patients on a daily basis is absolutely priceless, along with the convenient clarity of having explanations to everyday problems at their fingertips.
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